Neurology Update: Our New Friend Baclofen

At the beginning of June we had Stellan’s quarterly neurology appointment.   It ran much as they usually do, though this time they had genetics results (which are still really non-results and which I haven’t quite figured out how to write about just yet) and the nurse practitioner made some obnoxious comments, as she seems to do at every visit.
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Father’s Day #2!

We spent Quentin’s second Father’s Day in Pennsylvania with my grandparents (my mom’s parents, and Stellan’s great-grandparents) doing the best things to do at your grandparents’ house: eating, sleeping, chilling, and repeating.
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A Step Backward. Or Sideways.

On Friday morning I took Stellan for his second barium swallow study, in which he drinks white goo (barium) of varying densities while being recorded on a video x-ray to see whether he’s aspirating, having some or all of his food go down his windpipe and possibly his lungs. Basically, aspirating = bad. It can lead to choking (but doesn’t always) and can also cause pneumonia, and nobody wants that.
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15 months! 18 pounds! 9 teeth!

Stellan finally hit the 18 pound mark this week. He had been gaining weight nicely after his g-tube surgery and then leveled off the last month or so due to some problems keeping his food down, which has been stressful for us. So this still leaves him below the growth curve for weight, but at least he’s gaining again.
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